Advancing Access to Genetic Treatments
Based on CRISPR Technology
At NPREMA, in collaboration with Leading Edge Global, we are committed to advancing access to CRISPR technology-based gene therapy to cure sickle cell anemia. Through education, advocacy, and grassroots fundraising, we aim to empower communities and ensure equitable healthcare solutions by supporting cutting-edge genetic therapies that have the potential to transform lives.
Promoting Access and Awareness
through Education and Advocacy
Educational Outreach
Raising awareness about CRISPR technology, its potential in genetic therapy, and its current FDA-approved uses, such as treating sickle cell anemia. Educating both the public and medical professionals ensures a deeper understanding of this breakthrough technology at the cutting edge of medicine.
Collaboration
Partnering with healthcare providers, researchers, and institutions to ensure CRISPR-based therapeutic options are properly integrated into clinical practice, ensuring that the life-changing results of this technology reach those who need it most.
Policy Advocacy
Working on policy changes to ensure faster approvals, more significant funding, and equitable access to CRISPR gene-editing treatments. Advocating for broader insurance coverage and lower costs to make these life-changing therapies more widely available.
Financial Assistance
Providing financial support and subsidies to make CRISPR treatments accessible to disadvantaged patients, reducing barriers that may prevent those from low-income backgrounds from receiving cutting-edge care.
The NPREMA Initiative:
Expanding Access to CRISPR Gene-Editing Treatments for Sickle Cell Anemia
At NPREMA, we are leading a transformative initiative focused on expanding access to FDA-approved CRISPR treatments for sickle cell anemia. Through a comprehensive approach encompassing education, advocacy, and grassroots fundraising, our goal is to ensure that every individual affected by sickle cell disease can benefit from this groundbreaking therapy. By collaborating with healthcare professionals, policymakers, and research labs, we are committed to raising awareness, fostering innovation, and advocating for equitable healthcare solutions that can change lives.
Make an Impact With Us
Meet the Team
Our team of diverse volunteers is composed of dedicated students from various universities, including Adelphi University, NYU, Rutgers, Yeshiva University, and Baruch College.
Writer & Editor
Andrew Yang
I am excited to see the potential breakthroughs CRISPR has for the medical field, especially for life-impacting diseases like Parkinson’s Disease, Alzheimer's, and of course Sickle Cell Anemia
Data Managment
Alan Kucher
With hands-on experience in cardiac monitoring, phlebotomy, and home-based medical support, I bring a strong foundation in patient-centered healthcare. The CRISPR project excites me because of my deep passion for the medical field and my drive to make a meaningful impact in people's lives. Raising awareness around CRISPR's potential to treat genetic disorders aligns with my desire to be involved in lifechanging advances in medicine.
Public Health Advo
Joe Solovey
I am an aspiring medical student with years of experience in research, shadowing, and other health related experiences. I've performed DNA and RNA sequencing and worked with with CRISPR during my lab work, and this informs my passion for sharing more about such an influential breakthrough as the CRISPR therapy for sickle cell anemia.
Writer & Editor
Marcus Yang
My name is Marcus Yang, and I am an undergraduate student at New York University studying Biology on the pre-medical track. I have a background in scientific writing and research and I am extremely excited to learn more about CRISPR’s expanding biomedical applications and to spread awareness of its life-changing potential.
Host
Leigh Rudberg
I have a background in clinical research and community outreach, with experience leading initiatives that connect science and advocacy. I am passionate about advancing equitable healthcare solutions and supporting communities through education and innovation. I am excited to contribute to NPREMA's mission to expand access to CRISPR technology for sickle anemia treatment, recognizing its transformative potential in healthcare.
Director
Brushie Denburg
I'm passionate about the CRISPR SCD project because of how it showcases cutting-edge biotech advances in medicine, enabling previously unforseen possibilities in curing genetic conditions. I'm excited to raise awareness and advocate for access to treatment for people with sickle cell disease.
